Frequently Asked Questions (FAQ)


What does ACCQUIREnet stand for?

The Allied Cleft & Craniofacial Quality-Improvement and Research Network


Who is in charge of overseeing ACCQUIREnet?

Duke University is the Statistical Coordinating Center for ACCQUIREnet.


What are the benefits of ACCQUIREnet? Why is it needed?

The Allied Cleft & Craniofacial Quality-Improvement and Research Network (ACCQUIREnet) is a regional collaborative network for cleft teams in the United States working together to build a database for monitoring outcomes in cleft care; so that we can compare the outcomes and improve care for all cleft lip/palate patients. Many cleft and craniofacial teams in the United States currently find it difficult to track surgical complications and lack standardized data, which is imperative when analyzing such complications. You can’t improve a team’s surgical quality if you can’t measure it; and to do this robust, valid data is needed. ACCQUIREnet is a group of cleft teams dedicated to providing in-depth, standardized data in order to measure and compare cleft team outcomes and identify evidence-based best practices. The ACCQUIREnet network will not only be used for data collection but will also serve as a vehicle by which to disseminate best practices and evidence-based protocols of care across cleft teams in the region.

By prospectively collecting comprehensive safety and outcomes data, a team is empowered to perform periodic audits (e.g., annual reports) and on-demand monitoring; and by adhering to the data definitions of the standard set, one Cleft Team is assured that its data are compatible with those of other Cleft Teams. Standardized data create the possibility of large-scale collaborative quality-improvement networks as well as potentiating comparative effectiveness research and pragmatic clinical trials.


Who can use ACCQUIREnet?

Any Cleft/Craniofacial Teams are eligible to participate in ACCQUIREnet.  Once a team has joined the network, ACCQUIREnet is available to all members and extended members of their Cleft/Craniofacial Team. Surgeons may also designate members of their staff to access ACCQUIREnet on their behalf.


How do I access the database? 

Cleft Teams must first join the ACCQUIRE network to access the database.  If you are interested in joining the network please e-mail us at Accquire.net.


What type of data are collected by ACCQUIREnet?

Once a team has joined the network there are 3 potential levels of participation:

  1. Collection of EHR-type reported data
  2. Registry reported team data
  3. Both collection of EHR-type reported data and registry reported team data.

Is there a cost to use ACCQUIREnet? 

At this point in time we are in the pilot phase of this project and there is no cost associated with joining.


Who owns the data?

Each participating site has full ownership of and access to its own data through a data access group.  They are not able to see data from other sites.


How often can we expect to receive analyzed datasets with team or network bench-marking reports

ACCQUIREnet members who are participating in the registry reported team data can expect to receive dashboard report showing team/network benchmarks once a year. Teams are capable of pulling their own raw data from the ACCQUIREnet database whenever they would like.  Please click here to download a copy of the ACCQUIREnet Data Dictionary.


What is the URL for accessing the ACCQUIREnet Database?

Once your team has joined the network you will be able to access your ACCQUIREnet Database by logging into the Duke University REDCap system at: https://redcap.duke.edu/redcap/.  Please note that you must login via Duke University's REDCap website to access your database.


What are the steps a team must take to join the ACCQUIREnet?

E-mail ACCQUIREnet.com with the completed Join ACCQUIREnet Packet.

Depending on your team's level of participation your team will need to:

  1. Collection of EHR-type reported data:
    1. ...
    2. ...
    3. ...
  2. Registry reported team data
    1. ...
    2. ...
    3. ...
  3. Both collection of EHR-type reported data and registry reported team data.
    1. ...
    2. ...
    3. ...

Which members of our Cleft/Craniofacial Team should be expected to participate if we are planning to engage in the "Registry Reported Team Data" level of participation?

There are no requirement for who must participate in the "Registry Reported Team Data", however a typical team participating may look  similar to an ACPA approved team:

Main Members of a Cleft Team:

  • Team coordinator
  • Surgeons
  • Craniofacial orthodontists
  • Speech/language pathologists

Extended membership of the Cleft Team

  • Audiologist
  • Pediatric dentists
  • Geneticists
  • Nurses
  • Feeding & nutritional support
  • Otolaryngologist
  • Pediatrics/primary care physician
  • Psychologist/psychiatrists
  • Social workers

What institutions are currently part of ACCQUIREnet?

Click here to see which institutions have joined ACCQUIREnet, and which institutions will join in future waves. Ultimately, ACCQUIREnet plans to include all institutions with Cleft/Craniofacial Teams in the United States.


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